PROPECIAHELP: Persistent Finasteride Propecia Proscar side effects info & discussion forum

Forum for men with PERSISTENT sexual, mental & physical side effects which CONTINUE DESPITE QUITTING Finasteride (Propecia, Proscar), a 5AR inhibitor drug for hair loss, prostate enlargement & prostate cancer.
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 Post subject: My propecia story.
PostPosted: Thu Oct 06, 2016 3:54 pm 
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Joined: Thu Oct 06, 2016 3:52 pm
Posts: 6
Age: 26
Drug: Propecia
Usage: 5 months
Started: 01 May 2016
Stopped: 01 Oct 2016
Location: Oceania
1) How did you find this forum?

Google

2) What is your current age, height, weight?

26, 6"3, 188lbs

3) Do you excercise regularly? If so, what type of excercise?

Bodybuilding for the past 5 years (heavy weights 4 days a week)

4) What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?

Typical bodybuilding diet - high protein, high fat, carb cycling

5) Why did you take Finasteride (hair loss, BPH, other)?

Recession in hairline

6) For how long did you take Finasteride (weeks/months/years)?

4.5 - 5 months

7) How old were you when you started Finasteride?

26

8) How old were you when you quit?

26

9) How did you quit (cold turkey or taper off)?

Cold turkey

10) What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?

Propecia

11) What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

1mg EOD

12) How long into your use of Finasteride did you notice the onset of side effects?

My hair began shedding rapidly and noticed sexual side effects within 24 hours

13) What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[x] Loss of Libido / Sex Drive
[x] Erectile Dysfunction
[ ] Complete Impotence
[x] Loss of Morning Erections
[x] Loss of Spontaneous Erections
[x] Loss of Nocturnal Erections
[x] Watery Ejaculate
[x] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[x] Emotional Blunting / Emotionally Flat
[x] Difficulty Focusing / Concentrating
[x] Confusion
[x] Memory Loss / Forgetfullness
[x] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[x] Lack of Motivation / Feeling Passive / Complacency
[x] Extreme Anxiety / Panic Attacks
[x] Depression / Melancholy

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[x] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[x] Muscle Wastage
[x] Muscle Weakness
[x] Joint Pain
[x] Dry / Dark Circles under eyes

Misc
[x] Prostate pain
[x] Persistent Fatigue / Exhaustion
[x] Stomach Pains / Digestion Problems
[ ] Constipation / "Poo Pellets"
[x] Vision - Acuity Decrease / Blurriness
[x] Increased hair loss
[ ] Frequent urination
[x] Lowered body temperature

[ ] Other (please explain)


14) What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

It has only been 10 days since I stopped taking propecia and for the first 5 days I had absolutely no energy and was a lot of emotions

15) If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the "Blood Tests" section and link to them in your post)?

Had a blood test today, will have results on Monday morning.

16) Anything not listed in the above questions you'd like to share about your experience with Finasteride?

I never responded well to propecia, I probably lost 30-40% of my hair over the 5 months I was on it and my hair looked significantly more dull and the tips even appeared grey - the only reason I continued taking it was because it was suggested that this was normal and the hair was shedding weaker hairs for stronger ones to grow in their place.

17) Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

I started taking propecia because my hairline was receding - both of my older brothers still have full heads of hair despite being 30 and 34 and I didn't want to be the unlucky one in the family to go bald so I looked for ways I could halt further hair loss. At first I discovered rogaine (read about some guys getting dark circles under their eyes and there's no way I would risk it) and saw palmetto but was scared off by some of the stories, unfortunately I didn't hear the same stories about propecia and also didn't realise the similarity with saw palmetto. I researched propecia and came to the conclusion from mainstream information from Merck and other doctors (including the one that prescribed me propecia) that I might experience some sexual side effects but if they were uncomfortable I would discontinue use and life would go back to normal.

Within 24 hours there was some side effects, my hair went from slow hair loss to rapid shedding and my erection wasn't quite as strong and I noticed the watery ejaculate effect. The hair shedding I believed to be standard and the sexual side effects were only minor and I was prepared for these so I continued taking it.

After a couple of weeks my knees started to get very sore, it hurt to even sit down. I had never had joint pain before, I was extremely active and fit - I ate healthy and took fish oil every night. I figured I must have been going too heavy on the squats and never thought this may have been from propecia.

About 2 months in I started getting eczema - I do have relatively sensitive skin but I had never had any experience with eczema before and we had just gotten a new cat a couple of days before. I figured I was allergic to the cat and we had to take it back. I did look into whether it could be from propecia and found no info that suggested it could be.

A couple of weeks ago my skin began getting very dry and I started getting rosacea like symptoms on my face (red blemishes, visible blood vessels and around my nose was tingling). By now I knew something was very wrong with myself and I made an appointment to see a doctor. Over the next week my face was getting gradually worse and when I saw the doctor they confirmed what I had just started to think and told me to stop taking propecia - that was 8 days ago today. The same night I had seen the doctor I was out for dinner and that's when the brain fog started and I knew this was not good, this was (last) Wednesday night and I had taken propecia on the Monday.

From Thursday to Sunday is a blur as I still am having memory difficulty but I was on the couch the entire time and every part of me felt sore. I was fatigued, depressed, had a constant headache and I felt like I was in a dream, nothing felt real around me and every time I realised it was I broke down. The fact that I also couldn't remember things very well and couldn't focus and concentrate there were a lot of times I would forget about what was happening to me just to be reminded a few seconds later that my life had gone from being amazing to a living hell. I lost about 6-8 kgs (mostly muscle as I was already pretty lean) over the first 7 days despite still being able to eat my normal macros. I noticeably lost a lot of fat on my face, hands and feet - walking was painful until only a couple of days ago as it seemed my feet had to adjust to losing padding. For the first couple of days I was peeing every 20 mins and it was always clear even first thing in the morning, this seems to have stopped at least. Although every time I pee I can't tell if my bladder is empty but at least the stream is strong and seems normal.

After 5 days of hell and pressure from my employer to get back to work I went back (this was Monday). People were looking at me strangely the whole night but I managed to keep my composure. I have no idea how I managed to get through the night, I had a lot of cognitive issues and my memory made it very hard to get tasks done but I somehow managed to finish my shift. I couldn't believe how fast the shift had gone because I also lost my ability to keep track of time, even if I had just checked it. It felt like I didn't even work.

It's now 2am on Friday and over the past couple of days some issues have become less significant especially the brain fog, I can actually think now and my memory is a little better even though I can't remember much from the past couple of days. Other than a low libido and no random erections I don't seem to have many sexual side effects left but to be honest that is the least of my worries right now as I have been hit badly with the mental and physical sides. My skin was extremely dry and swollen the first couple of days I didn't even want to shower because I would just get out with flakes all over my face. I have been using a vitamin E moisturiser morning/night on my face and my skin is getting a lot better but not back to normal, still seems to have trouble producing oil on its own.

I understand it's still early stages for me as it's only 11 days since I last took propecia but I'm not too optimistic because of the severity of my sides, even my teeth are hurting and I have been waking up almost every 30 mins with a completely dry mouth. My stomach feels full all the time even if my stomach is grumbling so I know my gut is out of whack. I noticed that a lot of members mention leaky gut so I decided to look into it and discovered that eczema and rosacea are symptoms so that may explain my new creeping skin conditions since taking propecia. I went to the doctor today and he examined me and took bloods so I will update when I get results back.

On Saturday I'm going to go and stock up on lots of new foods/vitamins/supplements and start a strict diet. I've already been taking a multivitamin and fish oil as those were already part of my routine but I'm doubling the dose of fish oil now as my joints and bones have been really bad.

This has been a living nightmare. I had never had a panic attack prior to this, I lived a very stress free and almost perfect life but over the past couple of days I have accepted that this is something that I now have to unfortunately overcome and try and do anything I can to get back to how I was before I touched propecia even though I know I won't be the same person because even best case scenario I will still have physical and mental scars from this.


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 Post subject: Re: My propecia story.
PostPosted: Fri Oct 14, 2016 5:09 am 
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Joined: Mon Feb 16, 2009 2:07 pm
Posts: 1479
How many days did you take it?

While you have serious side effects in many they can resolve quickly. Give it 6 months and see where you are at.


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 Post subject: Re: My propecia story.
PostPosted: Sun Oct 16, 2016 4:18 am 
Offline

Joined: Thu Oct 06, 2016 3:52 pm
Posts: 6
Age: 26
Drug: Propecia
Usage: 5 months
Started: 01 May 2016
Stopped: 01 Oct 2016
Location: Oceania
I took it 3 days a week (Mon, Wed, Fri) for just under 5 months.

It's been almost 3 weeks since I last took it and there are definitely things that are better.

Almost all sexual sides have resolved, wake up with morning wood almost every day and libido is probably almost back to normal. I would say I have to try harder to get an erection still. Semen's no longer watery but seems to now come out thick, almost in groups of balls if that makes sense (sorry to be graphic). This is the least of my worries, I wish I was only affected with sexual sides at least that I could still live my life almost normally.

Still have other sides (especially brain fog, memory etc) but the worst thing at the moment is the rosacea like symptoms. The worst is after I eat I get hot flashes on my face, nose and cheeks go reddish and my nose swells and I'm worried that it's rhinophyma.

Dr was no help, he said I was healthy and okay and literally told me he thought that this wasn't caused by propecia. He tested my liver and thyroid which came back healthy which is good but he wouldn't test my test and estrogen levels so I will probably go to a new dr soon.

Been fasting on bone broth and glutamine all weekend, will be about 50 hours in total when I'm finished. Feel pretty shitty, not quite as bad as when I crashed. Haven't been as affected by the rosacea which makes me think a lot of my symptoms could be to do with my stomach (leaky gut, SIBO). Going to reintroduce protein in fats tomorrow with spinach and carrots and try to move back into other greens (even broccoli seemed to trigger the rosacea before I decided to fast). Only eating organic and grass fed and stocked up on B complex vitamins, magnesium calcium and vitamin D and also digestive enzymes to see how they help. Working out 4 days a week, first thing in the morning (no cardio). Even though I lost a lot of muscle, now that I've leaned out I realise I still have quite a lot and I'm now probably around 9-10% bf so that makes me think my test and estrogen are probably within a good range.

I miss coffee, all the great food I used to eat and all the energy and motivation I used to have. But going to give it 100% and try and get back to normal.


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 Post subject: Re: My propecia story.
PostPosted: Mon Oct 17, 2016 2:15 pm 
Offline

Joined: Thu Oct 06, 2016 3:52 pm
Posts: 6
Age: 26
Drug: Propecia
Usage: 5 months
Started: 01 May 2016
Stopped: 01 Oct 2016
Location: Oceania
My biggest fear is correct. My nose is getting larger and very red, I barely recognise myself when I take a photo or look in the mirror, I would say the end of my nose has probably doubled in size if not slightly more. The rosacea isn't really that bad on my cheeks except a little redness which comes and goes and a couple of visible, small blood vessels.

This is the biggest killer of my motivation because it's likely that this can't be reversed and it just seems to be getting worse and worse.

Never had any skin conditions until about 2 months in taking propecia. This shit is so crazy.


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 Post subject: Re: My propecia story.
PostPosted: Sat Nov 05, 2016 1:12 pm 
Offline

Joined: Thu Oct 06, 2016 3:52 pm
Posts: 6
Age: 26
Drug: Propecia
Usage: 5 months
Started: 01 May 2016
Stopped: 01 Oct 2016
Location: Oceania
Update time:

So I'm happy to report that some things have gotten better.

No more brain fog/constant headache and dizziness.

My nose has almost returned to its normal size. It has literally gone down in size by about 100%, maybe more. I've been putting aloe vera on it twice a day which I think has helped a little. I actually found out this was being aggravated by anxiety... about a week ago it started to get better and was about 90% cleared up and a couple of days ago I got stressed out and straight away it came back. Not sure what's causing it, maybe circulation problems? I have got it under control at least. But this goes to show you that we need to not let anxiety and stress get the best of us, no matter how bad things seem.

It feels so good to have mental clarity back, it's unbelievable. I feel so happy all the time now despite the fact I still have no energy and look like shit compared to what I used to. These areas I'm confident will also improve with time and setting the right environment.

It's been over 3 weeks now with no carbs in my diet, except with what I get from veggies. Eating lots of free range chicken breasts, kangaroo steaks and mince (cheap, lean and natural), wild sardines and the occasional wild salmon. For veg I've been eating about 50% organic, the things I don't get organic are things that are generally low in pesticides. Lots of broccoli, asparagus, avocados, brussel sprouts, spinach and carrots. Supplementing with a probiotic, B vitamin, magnesium + calcium and vitamin D. Had a long black coffee today, haven't had a coffee since this whole thing started and it was my only drug of choice prior. Tasted amazing, you really appreciate the small things when you go without them for so long... Not going to overdo it on the coffee though, maybe every week or two. Going to be adding some low GI carbs (still going to avoid gluten) when I hit the 4 week mark for no carbs since my digestion seems to be getting better.

Sexual sides unfortunately have only got worse which seems strange. This was the area I seemed to be not that affected in at first but now I have no sex drive, difficulty getting an erection and pretty much no ejaculate. This sucks obviously but considering the progress I'm making elsewhere I'm not going to bitch about it. The non sexual sides I had were so much worse. I think I may also be getting early stage gyno so I really need to get a full hormonal blood test done so I can get an idea of my test and oestrogen levels.

That's my update for now - things are getting better. Still a long way to go though.

P.S. -- Does anyone have any tips for combatting the potential gyno?


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 Post subject: Re: My propecia story.
PostPosted: Tue Nov 22, 2016 7:03 am 
Offline

Joined: Thu Oct 06, 2016 3:52 pm
Posts: 6
Age: 26
Drug: Propecia
Usage: 5 months
Started: 01 May 2016
Stopped: 01 Oct 2016
Location: Oceania
Spoke too soon. Added carbs back into my diet and nearly all symptoms are back, baseline is a lot better than when the beginning but it sucks.

Obviously it's messed my gut up so going to have to focus on a strict diet for however long it takes and then just reintroduce 1 food at a time and see how I react. I got too confident and added about 4 different foods first day back on carbs so I don't know what is causing it.

It's going to be a long journey but I will get there.


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 Post subject: Re: My propecia story.
PostPosted: Sat Dec 24, 2016 7:49 am 
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Joined: Thu Oct 06, 2016 3:52 pm
Posts: 6
Age: 26
Drug: Propecia
Usage: 5 months
Started: 01 May 2016
Stopped: 01 Oct 2016
Location: Oceania
Just wanted to make a quick update.

So I'm back to eating just meat and vegetables at the moment, that includes cutting out low starch carbs like pumpkin. It's been around 3 weeks and my brain fog has completely cleared up again, my head is very clear - I would say as much or perhaps even more than before. If I stay up late I do seem to get tinnitus and I don't feel too good but that usually clears up by the next night. I work nights so I aim to sleep by 12 and wake up at 9, consistency is key.

Another improvement is my skin isn't as dry, still not quite back to normal as my nose can still feel a bit dry at times but 500% better than when this began. I couldn't even have a shower without my face being covered in white flakes of skin it was so bad. I've even started sweating normally.

Still have a lot of problems to deal with not including the sexual sides which are horrible now. I got my bloods done and my testosterone
is very low so I have an appointment to see an endo. Free test was 64 L pmol/L (260-740).

Also really need to work out why I can't eat any type of carb as long term this no carb thing isn't viable as I don't want to tax my thyroid and low carb won't be helping with test either.

Anyway, I won't be posting here again after new year. I promise if I get back to 100% I will return to let you know, however long that may take. I wish everyone here the best of luck and hope you all have a great Christmas.


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