PROPECIAHELP: Persistent Finasteride Propecia Proscar side effects info & discussion forum

Forum for men with PERSISTENT sexual, mental & physical side effects which CONTINUE DESPITE QUITTING Finasteride (Propecia, Proscar), a 5AR inhibitor drug for hair loss, prostate enlargement & prostate cancer.
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PostPosted: Wed Dec 07, 2016 7:42 pm 
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Joined: Wed Dec 07, 2016 7:16 pm
Posts: 3
Age: 32
Drug: Propecia
Usage: 4 years
Started: 01 Jan 2005
Stopped: 02 Feb 2009
Location: SPAIN
0) Where are you from (country)? Spain

1) How did you find this forum (Google search -- if so, what search terms? Via link from a forum or website -- if so, what page? Other?) google

2) What is your current age, height, weight? 32, 189 cm, 89 kgs

3) Do you excercise regularly? If so, what type of excercise? Yes, gym and byke.

4) What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)? mediterranean diet.

5) Why did you take Finasteride (hair loss, BPH, other)? hair loss

6) For how long did you take Finasteride (weeks/months/years)? roughly for 4 years

7) How old were you, and WHEN (date) did you start Finasteride? 23

8) How old were you when you quit, and WHEN (date) did you quit? 27

9) How did you quit (cold turkey or taper off)? practically cold turkey

10) What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic? a first period of proscar and them a finasteride pharmacy-made product

11) What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? roughly 1 mg/day

12) How long into your use of Finasteride did you notice the onset of side effects? I noticed nothing (this does not mean there were not sides obviously) till the third year of use when i noticed a terrible and sudden brain fog side effect. By that time i was 26 and had a girlfriend and also noticed a reduction on libido and erection power but i could still handle the situation.

13) What side effects did you experience while on the drug that have yet to resolve since discontinuation? Very low libido and practially total impotence right now.

Put an X beside all that apply:

Sexual
[x ] Loss of Libido / Sex Drive
[ x] Erectile Dysfunction
[x ] Complete Impotence
[ x] Loss of Morning Erections
[ x] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[x ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ x] Emotional Blunting / Emotionally Flat
[ x] Difficulty Focusing / Concentrating
[x ] Confusion
[x ] Memory Loss / Forgetfullness
[ ] Stumbling over Words / Losing Train of Thought
[x ] Slurring of Speech
[ x] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[x ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ x] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[x ] Stomach Pains / Digestion Problems
[ ] Constipation / "Poo Pellets"
[ ] Vision - Acuity Decrease / Blurriness
[x ] Increased hair loss
[x ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)


14) What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? I stopped the drug because i started noticing the side effects. I have only followed the natural path (Zinc, Maca, etcetera) with little success.

15) If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the "Blood Tests" section and link to them in your post)? My hormons were a bit low in the past but they are perfect now (Testosterone at the top of the range) and the rest very well and in range too.

16) Anything not listed in the above questions you'd like to share about your experience with Finasteride? I took the drug for 4 years and the 6 months before stopping were very bad to me. I can undestand this now. I felt scared to even get out of my place, terrible brain fog and drop of libido. Erections were poor but i could have sex at least once a day. I would say that some of the sides (metal and feeling type) are practically back to normal but the worst thing is that i have literrally and progressively got worse with regard to sexual sides. I have had a total impotence over the last two years and i do not understand how this is possible since it should be the other way around because i stopped the drug more than 6 years ago. I consulted an endo for years and we run many tests but nothing was that wrong to put me on any medication. Also, i had surgery for a non-fuctioning pituitary adenoma (12 mm) that i believed was causing my problems. Wrong. This adenoma was removed successfully but i have seen no changes at all. I feel well overall (i do lots of sport, have a good diet, have a good job) right now but my sexual life is totally gone.

17) Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

I do not think that any hormonal treatment may help in my case since my blood run is perfect to my doctor eyes. I also got tested for many things and the third endo i saw run out of ideas. I am having an appointment with two doctors next week (endo and a rare condition doctor that was recommeded to me) but i hold no hope of finding any solution. I am open to any ideas/help you guys can provide.

I would also say that have stomach problems (lots of gass) and also have to urinate very often. I have also indentified that i drink lots of water, but i cannot say if this is related.

At this point, I would sadly address that i am prepared to live without libido or sexual life (when i have 10 mg of cialis i can have decent sex but i feel poor sensations) but i do not want to surrender... Please help!!!


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PostPosted: Thu Dec 15, 2016 11:14 am 
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Joined: Sun Sep 15, 2013 9:34 am
Posts: 109
Age: 30
Drug: Proscar
Usage: 4 1/2 years
Started: 01 Mar 2009
Stopped: 08 Sep 2013
Location: Netherlands
Quote:
I would also say that have stomach problems (lots of gass) and also have to urinate very often. I have also indentified that i drink lots of water, but i cannot say if this is related.


Something is wrong in your gut. Do an extensive gut test. The problem with frequent urination could be that your body wants to detox.


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PostPosted: Fri Dec 30, 2016 11:11 pm 
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Joined: Wed Dec 07, 2016 7:16 pm
Posts: 3
Age: 32
Drug: Propecia
Usage: 4 years
Started: 01 Jan 2005
Stopped: 02 Feb 2009
Location: SPAIN
Thank you man for your reply.

I went to another urologist last week (who is apprently the best in my city), young guy, roughly 40 who seemed to be serious and professional. I was expecting him to kind of believe me about all this issue, but he told me this impotence thing my be the result of this but also other problems. I will be get and echo doppler done and they will also with aprostadil to check my penis blood flow. I know many sufferers run this tests with no relevant outcome but this is all i can do. I can get tested at least.

I will be also seeing a sexologist although i do not think this is psycological but this will not harm (only to my pocket).


It may also be definitely a gut problem here. I feel very gassy very frequently burp too often.

Could anybody offer a protocol for stomach / gut improvement?

I feel completely lost because i do not know how to have at least a little improvement in the sexual area. I was 10 prefin, post fin i went from 6 to 0.1. Less would be having no dick.

Have a nice new 2017 year guys.

BPR


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PostPosted: Sat Mar 11, 2017 9:22 am 
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Joined: Wed Dec 07, 2016 7:16 pm
Posts: 3
Age: 32
Drug: Propecia
Usage: 4 years
Started: 01 Jan 2005
Stopped: 02 Feb 2009
Location: SPAIN
Hello,

I would like to make an update.

I got blood tets coming back normal and Testosterone at the high range. LH and FSH, although in rage, close to the bottom of the normal levels (this has happened the same over the last 5 years or so). However, doctor says that having this testosterone level i should be feeling the opposite, meaning, being horny and have good sex...

For a few reasons, i am having the echo doppler done this week. Has anybody got tested for this? any results to be expected?

It it comes back "normal", which approach you think i should have when having a new appointment with my urologist?

Thanks a lot for your help.

Cheers.


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PostPosted: Wed Sep 06, 2017 1:06 pm 
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Joined: Sun May 29, 2011 9:48 am
Posts: 91
Age: 24
Drug: Propecia
Usage: 6 months
Started: 01 Nov 2009
Stopped: 26 May 2010
Location: france
Your pudendal nerve is inflamed.
That s why hormones are not the issue.
Also abstain from sex. In some cases it can worsen inflammation. I am in your case. See my story.


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PostPosted: Thu Sep 21, 2017 4:53 pm 
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Joined: Sat Jul 08, 2017 3:31 pm
Posts: 17
Age: 25
Drug: Propecia
Usage: 2-3 months
Started: 01 Jan 2017
Stopped: 01 Apr 2017
Location: no where
hy blase' do you have palvic pain too?


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PostPosted: Fri Sep 29, 2017 11:41 pm 
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Joined: Sun May 29, 2011 9:48 am
Posts: 91
Age: 24
Drug: Propecia
Usage: 6 months
Started: 01 Nov 2009
Stopped: 26 May 2010
Location: france
I had a lot.
Now it is different but in a way far worse.
I would rather have pain and just an ounce of libido
Or at least a relaxed organ


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PostPosted: Sat Sep 30, 2017 12:57 am 
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Joined: Wed Feb 08, 2017 7:47 am
Posts: 88
Age: 88
Drug: Propecia
Usage: 1month
Location: Not where I want to be
blasé wrote:
Your pudendal nerve is inflamed.
That s why hormones are not the issue.
Also abstain from sex. In some cases it can worsen inflammation.

In my case abstaining from gluten and dairy also helps, try it if you have digestive issues like leaky gut. For me lactose-free milk is okay, butter is so-so, but milk, yogurt and pasta is brutal.


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PostPosted: Sat Sep 30, 2017 6:09 pm 
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Joined: Sun May 29, 2011 9:48 am
Posts: 91
Age: 24
Drug: Propecia
Usage: 6 months
Started: 01 Nov 2009
Stopped: 26 May 2010
Location: france
In early days diet was making a difference. Not anymore.
Inflammation or damage is too advanced.


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PostPosted: Sun Oct 01, 2017 5:04 am 
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Joined: Wed Feb 08, 2017 7:47 am
Posts: 88
Age: 88
Drug: Propecia
Usage: 1month
Location: Not where I want to be
What helps against the inflammation?


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PostPosted: Sun Oct 01, 2017 4:26 pm 
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Joined: Sat Jul 08, 2017 3:31 pm
Posts: 17
Age: 25
Drug: Propecia
Usage: 2-3 months
Started: 01 Jan 2017
Stopped: 01 Apr 2017
Location: no where
blasé wrote:
I had a lot.
Now it is different but in a way far worse.
I would rather have pain and just an ounce of libido
Or at least a relaxed organ


can you elaborate on your current condition, actually i have a lot of symptoms that are like you such as severe numbness, increased hairloss etc. i am 7 month post fin and there is no improvement in numbness and erections.


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PostPosted: Thu Oct 05, 2017 1:00 am 
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Joined: Sun May 29, 2011 9:48 am
Posts: 91
Age: 24
Drug: Propecia
Usage: 6 months
Started: 01 Nov 2009
Stopped: 26 May 2010
Location: france
I have complète impotence and I can t have orgasms anymore.
It is really hard to manage.


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PostPosted: Thu Oct 05, 2017 5:59 am 
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Joined: Sat Jul 08, 2017 3:31 pm
Posts: 17
Age: 25
Drug: Propecia
Usage: 2-3 months
Started: 01 Jan 2017
Stopped: 01 Apr 2017
Location: no where
blasé wrote:
I have complète impotence and I can t have orgasms anymore.
It is really hard to manage.

Have you tried hormonal therapy?? Or anything that is mentioned on this forum


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PostPosted: Thu Oct 05, 2017 11:40 am 
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Joined: Sun May 29, 2011 9:48 am
Posts: 91
Age: 24
Drug: Propecia
Usage: 6 months
Started: 01 Nov 2009
Stopped: 26 May 2010
Location: france
antifungals-> worked but i lost progress because i stopped and took again may be
desensitization -> worked but lost progress afer one year
fast-> worked but lost progress because ograms make me relapse now


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