PROPECIAHELP: Persistent Finasteride Propecia Proscar side effects info & discussion forum

Forum for men with PERSISTENT sexual, mental & physical side effects which CONTINUE DESPITE QUITTING Finasteride (Propecia, Proscar), a 5AR inhibitor drug for hair loss, prostate enlargement & prostate cancer.
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PostPosted: Thu Jun 12, 2014 6:07 am 
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Joined: Sun Mar 11, 2012 4:25 pm
Posts: 282
Age: 27
Drug: None
Location: EU/UK
Have you thought about applying for the studies which are going on at two major US medical institutions, these are looking at the underlying mechanisms behind PFS and hence are the real hope for facilitating any kind of treatments in future. Unfortunately not enough guys are applying. Participants are urgently needed. Please see details on front page of site.

_________________
If you choose to participate in the Baylor research, IT WILL BE PAID FOR

PM forum member Jorbie

You can also email Phillip Roberts - media@pfsfoundation.org

MONEY WILL BE NO OBJECT ... JUST PARTICIPATE ... LETS GET THIS CURED!


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PostPosted: Thu Apr 30, 2015 11:18 am 
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Joined: Fri Oct 31, 2008 3:41 am
Posts: 94
Hi there,

Thought id give an update 1 more year has passed. The girl did not want to see me again. I managed to sleep with a couple of girls in the UK, and actually it was pretty good. The only thing that was wrong was maybe a little soft with BJ's and once I had orgasmed, that was it, no more sex.

So I moved back to AUS. I don't really feel like telling a long story so i'll just give you some cliffnotes. Have had some anxiety / stress. Generalised anxiety has been a constant companion although in the UK ive seen signs of it abating. I was smoking in the UK (well aware this lowers penile bloodflow) but I thought you know what, fuck it. I was doing it for me and for fun. I swear to god the dopamine or nicotine or something from cigarettes helped relax me. Im well aware that cigarettes actually make you more stressed and the relief is from nicotine withdrawl, but I was generally less anxious on cigarettes and happier too. Still I quit, not worth it.

Current situation - I feel a bit sad and have the last few days. I have been abstaining from masturbation / porn, but decided about 3 days ago to re-test. Immediately regretted it. I've wanked a couple more times and my anxiety is back again.

My libido is still low, mental clarity is a lot better, anxiety is a lot better. Let me say what ive done and what I think is helping.

Sleeping - Have been sleeping fairly well, getting good sleep. Hopefully it helps
Intermittent fasting - Have been doing this for years now. I really think it helps with clarity, and hopefully cell repair (autophagy). Lately ive upped the fast (eat by 8:00pm latest, eat again around 1:00pm where possible).
Diet - Hasn't been brilliant but not terrible, try to eat healthy take away (subway, noodles etc). Tuna & eggs at home.
Gym - So ive been to the gym a bit over the years, but for the first time I feel relaxed there. Have had good energy there in general (few aches and pains) and have been getting stronger and putting on muscle. This is the light of my life at the moment as Ive never been able to tolerate the gym.
Reverse Kegels - Ive learnt that i have a tight pelvic floor. In a bid to try help my erections (prob from propecia problems) I tried Kegelling back in about 2005. Ended up with some premature ejaculation problems. I think this became a habit and have been reverse kegeling lately with good effect for my erections.
Mediation - I really believe meditation is great for anxiety and for lowering stress. I haven't done it for a few days but I MUST get back on it.
Walking - I also don't walk enough but I when I did I felt far better
Anxiety - Between mediation and some excellent resources I'm making incredible inroads towards anxiety. Claire Weekes is the key to beating anxiety imho. Propecia induced anxiety is almost impossible to deal with (trust me I know) but I think i'm dealing with the remnants of that. By facing > Accepting > Floating > letting time pass, Im learning slowly to let go. I need to give less fucks.
Work - I quit my job, was doing fine but long story. I'm currently at uni and fortunately am in the position I can stay away from working for a while. Full steam ahead trying to help myself.
Abstaining from porn and masturbation - This is my secret weapon. I know that propecia caused my problems, i'll never deny that. But abstaining from the above really really helps. It significantly improves my cognition more than anything else. In fact after 95 days I even felt my libido come back. When I orgasm a few again I get an awful hangover though (very anxious). Starting tonight, abstaining again, hoping to get to even longer this time 6-12mo. Should be able to.

So who knows if i'll ever get better. It does seem mentally im getting better ever so slowly. Perhaps in a few years I can hold down quite a professional job well, at least i'll have some purpose. There's a chance i'm getting better in all areas, even sexually. It seems to be an upward trend. My deepest hope at the moment is that working out for a year and packing on some bulk switches something back on.

Welcome to contact me for any reason, but i'll probably try go back to my own devices again now. I am really averse to taking pharmaceuticals to cure myself, since that's what screwed me in the first place.

I really wish you all (and myself) the best of luck


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PostPosted: Wed Oct 19, 2016 1:38 pm 
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Joined: Fri Oct 31, 2008 3:41 am
Posts: 94
Guess what, me again. 10 year propecia man checking in. And what a weird night to post. Normally id make these posts when i'm feeling pretty good, but i'll readily admit i feel a bit down right now. But not too bad. I doubt anyone will even read this but i find it handy to keep a diary.

So, last 2 years ive been doing uni, going to the gym and doing work placements. Uni has been going fairly well (grade wise) although my lord do i hate assignments. The stress of having them over my head is horrible. One more assignment to go till my masters is finished.

The gym - I've been going to the gym for about 1.5-2 years now, doing a semi compound/powerlifting split. Have made some decent strength gains (bench 125kg, squat 170kg, deadlift 210kg). I feel that my gains might be a bit low for my body shape and the way im put together, im a bit of a nugget. Do i have low T? I don't know, perhaps this is usual for someone who isn't neccessarily eating right / good with form.

Work placements - have been doing placements they have been going well. In fact i landed a job a week ago at one of my placements.

Sooo.. How am i going? Well firstly on the cognitive side, I am generally pretty good. I get sadness, i get anxiety.. BUT my learning about claire weekes, acceptance and some other resources have accelerated my mental health leaps and bounds in general. I'm slightly out of whack and sad right now, but i cant always be great. Quite honestly though, learning the truth about my anxiety has often set me free. Sometimes i go through a period of a month with very little anxiety, sharp thinking (at least for me), feeling calm and content. Its very nice, and i have a great deal of hope that this will continue in the future, as i believe in what i have learnt 1000000%. If you have issues with anxiety, i'm a good contact for you.

So this leaves my physical side effects.. Well this is kind of what has brought me here. For quite some time i rarely think about it, especially when im feeling really good. In honest truth i still have a feeling in the back of my mind something is wrong. Its sad, im a kind, good looking, fairly intelligent, funny and socially intelligent man. Yet i just never get laid. Actually at the moment i can sense im being checked out a lot. Yet a part of me is terrified, a part of me also just doesn't seem to have that drive and motivation. Its sad really. What i wouldn't give to just want to really ravage a women. I think that kind of feeling would fill me with confidence and i would seek out someone. At this stage im kind of waiting for a girl to fall into my lap, which wont happen and even if i do i'll probably be too scared. That being said, i can perform sexually ok, I did in the UK and i don't think much has changed. My performance might only be 'ok' though, i sense i'm not at my best.

I'm just going to keep working on the physical/mental, going to the gym, keeping happy, and working on self acceptance / acceptance of anxiety. I honestly think that it is a component to my sexual desire. I think that having my self esteem knocked so hard by what has happened + a very critical father has done a fair bit of damage. I do think changing my relationship to myself and to anxiety i'll notice libido will come back a little. There are little flashes.. Today i was talking to quite a cute woman in my team at work and i could see her figure beneath her black outfit and something definitely stirred. It was almost like the starter motor trying but nothing else happening.

I dream of having my libido return some day. I wonder how much is mental and how much is propecia. I suspect some is due to this drug, as hard to accept as it is. I do doubt i'll ever find a recovery formula here and i probably will never look. The only chance i have is my mental game, my hope, and perhaps time. When i'm not down i can function, my job is fairly decent and I can perform and help people. I can enjoy things in my life although my life is somewhat empty. Every now and then i get joyus because my anxiety fades, and its wonderful and this is enough to spur me on. My only dream is for my sexual system to kick in, for me to imagine myself making love to a women and for it to be a nice thought. If that happens my life might turn from Salvageable, to fantastic.

For anyone that reads this, I wish you the best and you're welcome to contact me.


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PostPosted: Thu Oct 20, 2016 4:26 pm 
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Joined: Tue Dec 22, 2015 3:43 pm
Posts: 4
Age: 26
Drug: Propecia
Usage: ~100 days
Started: 01 Apr 2014
Stopped: 31 Dec 2014
Location: Brazil
I know that feel, bro...

No, really, it's not just for memes' sake; you've described exactly how I look at life right now. I'm trying to go on with it, but sometimes it gets so hard to contemplate the emptiness... Libido is way more important than what one would think.

Best wishes for you (and for me).


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PostPosted: Sat Feb 25, 2017 12:01 am 
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Joined: Fri Oct 31, 2008 3:41 am
Posts: 94
Ok, checking in here to report some weird ass shit.

So things in general have been going ok. I've worked hugely on the mental symptoms in the last 3 years and its really paid off. I have already spoken about using Claire weeks / anxietynomore blog. I didn't have many other mental symptoms except what seemed like apathy, fatigue and poor memory. My brain fog had since cleared years ago. I had some bouts of feeling quite low (which was unusual for me even post propecia). They weren't that regular (perhaps once every 3 months). I started to suspect that i did have depression basically all the time, I was never really happy. Anyway I started reading about self compassion, i listened to a great audiobook called love yourself like your life depends on it, and some good ones by Tara Brach. I started to notice that i was thinking a lot clearer, performing better at work and more about to talk without worry.

After a failed date about 3 weeks ago (she actually said she was sad i didn't check her out more). I think she thought i didn't find her attractive. I started looking at Propecia help again dismayed about my libido. This really sent me into a tizz where one weekend i was reading all weekend about it, yelling at my parents occasionally, very down, distressed and worried. Basically saying that i needed to quit my job and move to Thailand. Yes i got that upset.

I tried a couple of random things, bought some tomato juice and ate a whole can of asparagus. Basically desperate.

I went to the doctor and discussed this again (a new doctor as they keep moving on). He ordered some blood tests, suggested i see a sexual health counsellor but also said that perhaps I could also see an endo as he could see it was years of the same. I started thinking that perhaps it was time to start trying some harder drugs as i would never recover. Id try HCG, Test or something like that. Yet at the same time i was also thinking about my mental symptoms. I wondered how much of an effect feeling fucked by propecia was having on me. One night i said that perhaps i should start giving love and attention to my thoughts of low libido.

Anyway blood tests came back and he tells my my cholesterol is a bit high, my liver (ALP & Bilirubin) is high also. My liver has shown signs of damage in the past (I barely ever drink so i wouldn't be surprised if that's Propecia related. Then he tells me my T is out of range. Yep i knew it. He tells me that it is elevated???? What??????????. The range is like 12-32. My T is 34.4. Wtf? Last year around the same time it was 22.2. He wrote me a referral to the endo.

So i started taking stock of my body, what the hell is going on. Its probably in my head but i realised i do feel manly. Keep getting headaches like i used to when im younger. I feel a bit stressed as if there is a pressure to do things / talk more. I feel a small tingling in my scalp. I don't care what people think at all at the moment. The strange thing is i think im naturally a high T person. As a child my voice broke earlier than everyone, i was quite muscular and also my hair fell out at 15!.

Ive been hitting the gym (powerlifting) for about 2.4 years now consistently 3 times per week (sometimes 4). I unknowingly took Tribulus before i found out about the blood test and I felt like an animal at the gym one night. This trib was after the blood test though.

So i'm really confused. I feel better, in fact im even having some sexual thoughts. Am i recovering? I don't know but i'll keep an eye on things over the next few months. Was the huge T some weird aberration/error? Surely a tin of asparagus couldn't do this? Hopefully it lasts or something changes.

If i really am getting better i really believe finally unwinding and dealing with my thoughts on this could be what has done it. I don't want to Jinx myself, i am just going to relax and not expect the world and see what happens..

Elevated T... wtf lol.


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PostPosted: Thu Mar 02, 2017 7:48 am 
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Joined: Mon Aug 22, 2016 2:27 am
Posts: 31
Age: 23
Drug: Propecia
Usage: 1 day
Started: 10 Jul 2016
Stopped: 11 Jul 2016
Location: India
Yo...those are really good sign of recovery....Plss hold on..I know a friend who was with same situation ur in right now......actually its been a long time since he recovered. High T levels are somewhat expected in ur case..its simply androgen resistance....this is the transition period where ur body begins to taste essence of Testosterone. So be careful...abstain and let ur body detoxify in its own way...take care...hope u find ur way back to urself ....soon enough..Godspeed..GDV


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PostPosted: Wed Mar 29, 2017 9:35 pm 
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Joined: Fri Oct 31, 2008 3:41 am
Posts: 94
GDV wrote:
I know a friend who was with same situation ur in right now......actually its been a long time since he recovered.


Hey there GDV, sorry I missed your message i never get a email about this thread. I've just subbed to it. Do you mean your friend had high T and then eventually recovered? That definitely is a nice thought.

So just an update on myself again. I have been learning Metacognitive therapy, and it is working wonders with my mental health. Right now i probably feel calmer and happier than i have in years. I had some more blood tests with the doctor.

To my surprise, My test is still holding at a elevated 34.2 now. My uncle found out he had hereditary haemochromatosis (very high iron in the body) I was tested for that as i thought a lot of symptoms aligned. I came back as a carrier for it which means i should have very little clinical symptoms. Interesting, my transferrin saturation is high 72% (up from 50% two years ago) but my ferritin level is low. This does sound a little odd as >45% transferrin sat is often an indication of the start of iron overload. I'll keep an eye on this.

My Bilirubin is very high 52 from a range of like 0-20. The doctor has tested and i seem to have an apparently benign disorder called Gilberts, where the liver doesn't properly destroy bilirubin that breaks down from red blood cells. Ive done some reading on it and a lot of people actually think they do have symptoms from it. It reminds me of propecia, doctors think it doesn't do anything, yet there is forums of people talking about fatigue. The only way to help that appears to be a healthy diet. Lol so it looks like i cut the sugar and refined carbs and continue healthy...

I do wonder what part my liver has to play in all of this. I know a lot of prop people have high SHBG, i went through my tests and even thought it was requested i cant see the results. This could actually explain my high T if its all bound up. When i see the endo next month i'll be watching this. What is interesting is my liver has been slowly but surely reporting better figures over time apart from Bilirubin. I wonder if its healing? Perhaps this Gilberts syndrome (30% slower processing of drugs in phase 2) or whatever it is actually explains in part why I got so fucked by Propecia.

I actually agree with you btw GDV, enough changes are happening at the moment that i am not sure id consider drugs unless the endo can really show me somethings wrong.


So i still have very low libido, although definite little flashes happening. This morning i woke up and realised i had been dreaming of this girl at work (who im friends with never thought sexually about). As i was waking up i kept thinking about her in a bikini and definitely libido there so that was nice.

Will continue to update if anything interesting changes.


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PostPosted: Fri Mar 31, 2017 5:39 am 
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Joined: Mon Aug 09, 2010 12:53 am
Posts: 352
Age: 0
Location: ontario canada
Always had high bilirubin, too. How's your wbc/platelets.. low?


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PostPosted: Fri Mar 31, 2017 7:53 am 
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Joined: Fri Oct 31, 2008 3:41 am
Posts: 94
bluejaysfan wrote:
Always had high bilirubin, too. How's your wbc/platelets.. low?


I just had a look for you
WCC (white cell count) is 4.5 (4.0-11.0)
Platelets 183 (150-450)
Haemoglobin 179 (130-180).

So yeah kind of low normal i guess. any interesting hypotheses?


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PostPosted: Sat Apr 01, 2017 6:00 am 
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Joined: Mon Aug 09, 2010 12:53 am
Posts: 352
Age: 0
Location: ontario canada
Guess not. I'm similar except out of range slightly low on wbc, platelets.. Also top range haemoglobin.

I was going to maybe ask my doctor today about some type of anemia, spleen or bone marrow issues, but he blew off the results including my high bilirubin. He did let me try thyroid medication. I'm borderline on TSH... But have a lot of hypothyroid symptoms. Hoping for improvement on fatigue, sleep quality.


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PostPosted: Sat Apr 01, 2017 10:43 am 
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Joined: Fri Oct 31, 2008 3:41 am
Posts: 94
bluejaysfan wrote:
I was going to maybe ask my doctor today about some type of anemia, spleen or bone marrow issues, but he blew off the results including my high bilirubin. He did let me try thyroid medication. I'm borderline on TSH... But have a lot of hypothyroid symptoms. Hoping for improvement on fatigue, sleep quality.


Good luck with that mate, ive thought about my thyroid many a time. It always comes back clear but i will be going to see an endo next month who is a thyroid and hormone specialist so will be interesting to see if he comes up with anything.

Interestingly, without having a clue what im talking about it seems that Propecia is processed through glucuronidation in phase 2 of the liver. That is the same part in those in gilbert's syndrome have fucked. Wouldn't be surprised if the liver was really struggling with its load with propecia / red blood cells / hormones etc and this is what led to my crash. Doctors say that high bilirubin doesn't have many effects, i'm not sure that's true. This last week ive been so very fatigued, i even have a small pain around my liver area on the right side. My stool is yellowy clay coloured. My fatigue could be PFS but i don't think so. I mean if the liver is struggling with RBC i wonder what else it is too.

Let me know if you have any success with your thyroid


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PostPosted: Sat Apr 01, 2017 4:17 pm 
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Joined: Mon Aug 09, 2010 12:53 am
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Location: ontario canada
Supposed to get tested in about 10 weeks then see him after that. Could take a while to have an effect, if any, but, I'll let you know.


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