PROPECIAHELP: Persistent Finasteride Propecia Proscar side effects info & discussion forum

Forum for men with PERSISTENT sexual, mental & physical side effects which CONTINUE DESPITE QUITTING Finasteride (Propecia, Proscar), a 5AR inhibitor drug for hair loss, prostate enlargement & prostate cancer.
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PostPosted: Thu Oct 17, 2013 6:05 pm 
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Joined: Thu May 17, 2012 9:33 pm
Posts: 997
Age: 37
Drug: Propecia
Usage: 3 years
Started: 06 Mar 2003
Stopped: 04 Jan 2006
Location: Atlanta, GA
I just noticed that the PFS Foundation has put out a press release about Brigham and Women's Hospital and Baylor College of Medicine recruiting patients for their respective clinical studies:

http://www.pfsfoundation.org/news/docto ... h-studies/

Image
Image

I actually saw it on Twitter:

https://twitter.com/PFSFoundation

I didn't realize the foundation had a Twitter feed, but everyone here should now follow it.


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PostPosted: Wed Oct 23, 2013 3:12 am 
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Joined: Mon Oct 31, 2011 10:01 am
Posts: 980
Age: 88
Drug: Propecia
Usage: Off and On
Location: USA
Front page looks good mew, thanks for all your help.

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"Finasteride was well-tolerated." Merck

"DHT does not appear to have any essential physiological role in the adult male." Merck to the FDA, November 1997


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PostPosted: Thu Oct 31, 2013 12:26 am 
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Joined: Fri Jun 01, 2012 9:49 pm
Posts: 1106
Age: 28
Drug: Proscar
Usage: 2 Years
Started: 01 Mar 2010
Stopped: 25 May 2012
Location: Ireland
Anyone know when the results of these studies wll be released ?

I'm hoping that the shit will hit the fan when they are released,

Hopefully there will be massive repulsives for merck and hairloss industry who pedal this poison.

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Please give what you can to the Post Finasteride Syndrome Foundation.
http://www.pfsfoundation.org/


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PostPosted: Mon Nov 18, 2013 1:06 am 
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Joined: Wed Feb 28, 2007 1:45 am
Posts: 774
Location: Boston
Age: 36
Drug: Propecia
Usage: 21days only!
Started: 21 Jan 2007
Stopped: 14 Feb 2007
Location: Boston
I'm taking place in the study at Brigham and Women's. JFYI


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PostPosted: Mon Dec 16, 2013 6:14 pm 
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Joined: Mon Dec 16, 2013 6:10 pm
Posts: 40
Age: 35
Drug: Dutasteride
Usage: 5 years
Started: 01 Jan 2008
Stopped: 01 Jan 2012
Location: London
Boston, have you had any initial meetings yet? Are they confident of success? This is the only ray of light for me at the minute.


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PostPosted: Tue Jan 07, 2014 12:16 am 
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Joined: Fri May 11, 2012 11:46 am
Posts: 136
Age: 23
Drug: Propecia
Location: United Kingdom- London
When will the studies take place?

This is a ray of hope.

Please keep us informed Boston.


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PostPosted: Wed Jan 08, 2014 6:52 am 
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Joined: Wed Feb 28, 2007 1:45 am
Posts: 774
Location: Boston
Age: 36
Drug: Propecia
Usage: 21days only!
Started: 21 Jan 2007
Stopped: 14 Feb 2007
Location: Boston
I am about to start part 2, which is the MRI scan.

If I had to guess...this study won't be published until 2015. I think it'll take them the year. They are very friendly and good. But hard to get in contact with, and takes them forever to return phone calls.

I don't know if any of you have read the specifics of the study and what they will be testing, but its VERY interesting. Very well designed study!!


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PostPosted: Wed Jan 08, 2014 6:31 pm 
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Joined: Fri May 18, 2012 8:10 pm
Posts: 1381
Age: 36
Drug: Proscar
Usage: 9 years
Started: 15 Aug 2003
Stopped: 05 Apr 2012
Location: New York
Instead if being the arrogant guy who is the "know", why don't u share with us some of the specifics that we might not be aware of instead of alluding to it


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PostPosted: Wed Jan 08, 2014 7:39 pm 
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Joined: Wed Feb 28, 2007 1:45 am
Posts: 774
Location: Boston
Age: 36
Drug: Propecia
Usage: 21days only!
Started: 21 Jan 2007
Stopped: 14 Feb 2007
Location: Boston
I don't see how I'm being "arrogant"

Maybe if you withdraw your comment, and then try asking me appropriately next time I will tell you!

I will have to go search through piles and piles of paperwork before I can find the large packet outlining the entire study. If I even have it!?!


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PostPosted: Thu Jan 30, 2014 7:40 pm 
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Joined: Mon Aug 19, 2013 12:00 am
Posts: 10
Age: 37
Drug: Propecia
Usage: 9 days
Started: 09 May 2013
Stopped: 17 May 2013
Location: USA
@boston

I'd be very interested in hearing about the methodology/testing and possible hypotheses.


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PostPosted: Mon Feb 03, 2014 11:31 pm 
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Joined: Wed Feb 28, 2007 1:45 am
Posts: 774
Location: Boston
Age: 36
Drug: Propecia
Usage: 21days only!
Started: 21 Jan 2007
Stopped: 14 Feb 2007
Location: Boston
Well tell this clown Finatruth to withdraw his comment.


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PostPosted: Thu Feb 06, 2014 11:16 am 
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Age: 23
Drug: Proscar
Usage: 4 days
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Stopped: 18 Dec 2013
Location: .
when will this study finish? any information?

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PostPosted: Tue Feb 11, 2014 7:19 am 
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Joined: Wed Feb 28, 2007 1:45 am
Posts: 774
Location: Boston
Age: 36
Drug: Propecia
Usage: 21days only!
Started: 21 Jan 2007
Stopped: 14 Feb 2007
Location: Boston
I asked them the other day. They said it will hopefully be submitted within the next few months and hopefully be published before the new year. They sounded optimistic it would all get done quickly and efficiently...

I wonder if thats how good researchers are at such an accomplished institution.. its like its an on to the next study typa attitude...idk

that would be great though!


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PostPosted: Wed Feb 12, 2014 1:19 pm 
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Joined: Sat Apr 06, 2013 7:49 am
Posts: 98
Age: 29
Drug: Proscar
Usage: 5 months
Started: 15 Jul 2011
Stopped: 20 Dec 2011
Location: ireland
boston wrote:
I asked them the other day. They said it will hopefully be submitted within the next few months and hopefully be published before the new year. They sounded optimistic it would all get done quickly and efficiently...

I wonder if thats how good researchers are at such an accomplished institution.. its like its an on to the next study typa attitude...idk

that would be great though!

That is excellentt news Boston. If you have any further information about the specifics of the study it would be greatly appreciated, other than that we will just have to wait. I for one am very hopeful about these studies even if they don't uncover the exact cause, these studies should result in future research which may uncover some answers. There is a root cause to this medical condition and peer reviewed scientific research the only real way of identifying it. It is frustrating waiting for these studies to be completed but that's life.


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PostPosted: Tue Feb 25, 2014 8:04 am 
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Joined: Mon Dec 16, 2013 6:10 pm
Posts: 40
Age: 35
Drug: Dutasteride
Usage: 5 years
Started: 01 Jan 2008
Stopped: 01 Jan 2012
Location: London
Like everybody else here, I hope and pray that this study will reveal a solid lead as to the cause of PFS. I know that in reality it is the first study in what will amount to a longer line of research, but I have so much pinned on the success of this story. Its that glimmer of hope that keeps me going.


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PostPosted: Sun Mar 09, 2014 6:30 pm 
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Joined: Sat Mar 24, 2007 9:07 pm
Posts: 136
I flew there and did not qualify for the study. Its more for impotence sadly anything with orgasm issues is on the back burner. Partly because their is not much info on orgasms in general let alone why propecia causes orgasm issues.


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PostPosted: Mon Apr 07, 2014 4:17 pm 
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Joined: Sun Apr 06, 2014 11:16 pm
Posts: 5
Age: 28
Drug: Propecia
Location: us
Would it be an issue if you did not have a prescription while taking Propecia? Do they require proof that you took the drug? I ordered it from an overseas pharmacy like I'm sure many of you did here. I hope that is not a problem. Are they still accepting applicants or is it too late?


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PostPosted: Sun Apr 20, 2014 7:02 pm 
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Joined: Thu Feb 19, 2009 7:10 pm
Posts: 160
Location: Pennsylvania
Age: 37
Drug: Propecia
Usage: ~58 days
Started: 0-11-2008
Stopped: 0- 1-2009
Location: Pennsylvania
I am waiting for an update on this Harvard study.

Could someone clarify what qualifies a person for the Harvard study? I will phone them again if I get some money to travel there. They were unwilling to compensate me for travel when I contacted them months ago.


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PostPosted: Mon Apr 21, 2014 1:34 am 
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Joined: Sat Feb 26, 2011 9:19 am
Posts: 378
Location: NYC
Age: 90
Drug: Propecia
Started: 01 Jan 2009
Stopped: 01 Jan 2010
Location: USA
Tbone wrote:
I am waiting for an update on this Harvard study.

Could someone clarify what qualifies a person for the Harvard study? I will phone them again if I get some money to travel there. They were unwilling to compensate me for travel when I contacted them months ago.


Call the number, it's worth a few minute conversation to find out for sure. I believe one or maybe even both of the studies will support travel expenses but that is also worth checking. I'm speculating but I think things that may disqualify you would be if you used finasteride for BPH rather than hairloss, you are above a certain age (maybe 45), or you are currently on medication for prospective treatments. I'm sure it would be appreciated by many of us on the forum if you took 5 minutes or so to call Harvard and get the details.


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PostPosted: Thu Jul 17, 2014 7:38 pm 
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Joined: Sun Jun 02, 2013 3:43 pm
Posts: 940
Location: Hull, Uk
Age: 37
Drug: Propecia
Usage: On-Off 4mth
Started: 05 Sep 2010
Stopped: 30 Apr 2013
Location: HULL, UK
Guys

I'm looking to travel to Boston in September 2014 to do the BRIGHAM study. Please would anybody be in a position to offer me a place to sleep for 4-5 days whilst I'm there?

I'm planning to fly from the UK on a Sunday to arrive in time to commence the study on the Monday morning, which should last Monday - Wednesday then fly home there after?

Let me know if you or anybody else can help me out.

Regards Paul

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