PROPECIAHELP: Persistent Finasteride Propecia Proscar side effects info & discussion forum

Forum for men with PERSISTENT sexual, mental & physical side effects which CONTINUE DESPITE QUITTING Finasteride (Propecia, Proscar), a 5AR inhibitor drug for hair loss, prostate enlargement & prostate cancer.
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PostPosted: Wed Jan 25, 2012 11:34 am 
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Posts: 792
Age: 26
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Usage: S.P.
Location: Indy
MarkTwain: Yes! You are def kn to this. I notice the same. I always have clenched or kegeled during sex/masturbation. Any time i now conciously relax my pelvic floor during sex my erections are a lot harder and last longer!


As far as the guys talking about abstinence, It really does not seem to personally help me enough to bother with it. I have gone multiple times w out ejaculating for 5 weeks. What helps more is simply pelivicfloor release/opening/relaxation.


I really encourage more of you to try out prazosin/minipress. It. Asically forces your pelvic floor to relax..

ChrisC wrote:
Are you still doing the stretching etc Moonman? Any improvements?

No i have simply not had the time or ambition.


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PostPosted: Thu Jan 26, 2012 12:13 am 
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Did your doctor prescribe Prazosin? If not any recommendations on where to get it?


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PostPosted: Thu Feb 02, 2012 12:09 pm 
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Posts: 574
I am going to try an alpha blocker. Will let you know if any improvements. I am convinced now that the pelvic floor pain is the cause of our problems.

When its less and i feel less clogged up i feel better. When i wear tighter trousers i feel more generally unwell. When i have a full bladder or full bowel it is worse. My pelvic area on rectal examination is painful. It is partially relieved by antibiotics. Chronic pelvic pain syndrome is known to cause erectile dysfunction, low libido and fatigue. I have a normal hormonal profile including 3 adiol-g and testosterone boosting supplements increase my androgenic functions albeit by also increasing my pain.


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PostPosted: Thu Feb 02, 2012 1:20 pm 
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Age: 26
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Usage: S.P.
Location: Indy
19 wrote:
I am going to try an alpha blocker. Will let you know if any improvements. I am convinced now that the pelvic floor pain is the cause of our problems.

When its less and i feel less clogged up i feel better. When i wear tighter trousers i feel more generally unwell. When i have a full bladder or full bowel it is worse. My pelvic area on rectal examination is painful. It is partially relieved by antibiotics. Chronic pelvic pain syndrome is known to cause erectile dysfunction, low libido and fatigue. I have a normal hormonal profile including 3 adiol-g and testosterone boosting supplements increase my androgenic functions albeit by also increasing my pain.

Prazosin/Minipress or the other one that starts with a D that I cannot think of at the moment. Try those do not try any others.

As far as where to get them...I am pretty sure that I just ordered off a random online pharmacy..cant remember where.


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PostPosted: Thu Feb 02, 2012 9:57 pm 
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Location: UK
I'm booked to see a pelvic pain specialist. Full examination via the back passage looking for trigger points. She's treated a few men and thinks she can help, fingers crossed.


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PostPosted: Tue Feb 14, 2012 4:39 pm 
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Joined: Tue Jul 03, 2007 11:59 am
Posts: 574
I have started Prazosin 4mg at night. I worked up to that dose. Overall not noticed much improvement. It drops my BP as expected so i feel quite lethargic and decreases my libido. Hasn't really improved my erectile function - if anything has worsened it. The pain i experience is also not relieved by it. Have been on it for 4 nights now.

It has relaxed my perineum and things feel less "tense" downstairs but the pain persists and persists in stopping erections. Also taking it at night has improved my quality of sleep i think. Sleep more restful as less tension i think. However, doesn't quite hit the spot. I wonder if a more prostate selective one would be more beneficial as prostate targeted antibiotics help me.

Plan is to stop it for a few days as need to have some function. May give it another go next week.


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PostPosted: Thu Feb 16, 2012 2:34 am 
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Joined: Wed Oct 12, 2011 7:45 pm
Posts: 27
Age: 31
Drug: Propecia
Usage: 8 Months
Started: 07 Sep 2010
Stopped: 24 Apr 2011
Location: Indianapolis, IN
When i think back to when ALL my prostate issues developed it was roughly when my stools got softer and they continue to be soft... Did anybody else notice this? my thought is that soft stools do not properly "massage" the prostate or stretch the pelvic floor when defecating. Just a thought and would be interested to hear feedback.

I took a course of Cipro and it didnt even touch my issues.


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PostPosted: Sat Feb 25, 2012 4:18 pm 
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Joined: Wed Jun 17, 2009 4:20 pm
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http://www.ncbi.nlm.nih.gov/pubmed/19762053
Perhaps we all just have stress?


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PostPosted: Sat Feb 25, 2012 8:16 pm 
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Joined: Wed Jun 17, 2009 4:20 pm
Posts: 486
I only have pain in the urethra sometimes. I don't get any pain while touching my perineum right now. I'll touch it again, when I actually have pain in the urethra also.
Do you think I could be having this CPPS too? My symptoms only indicate prostatitis. The problem is there's no bacteria found.


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PostPosted: Sun Feb 26, 2012 1:55 pm 
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http://www.eestiarst.ee/static/files/042/ea1002lk83-94.pdf
Something that still supports the use of antibiotics. They used very broad methods to name the specific microbes and found out that patients with abacterial prostatitis still have a lot more bacteria in their prostates. The number of patients could have been higher, but it's not that bad...
I think I have not yet lost my hope in antibiotics.


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PostPosted: Sun Feb 26, 2012 3:08 pm 
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Joined: Wed Sep 01, 2010 3:56 pm
Posts: 269
Age: 33
Drug: Propecia
Usage: - than 3 wks
Stopped: 0- 0-2005
Location: France
Please read what i posted there viewtopic.php?p=52120#p52120
I have many many studies to link to but am just too lazy for the moment. I WILL post them soonish.
I got my prostatic fluid tested for mycoplasma and corynebacteria and nothing was found (which still doesnt mean there arent any pathogens). Do NOT get obsessed with antibiotics without good reason.
Here is a link aptly named "a cautionary tale" http://www.chronicprostatitis.com/cautionary_tale.html
If you want to use abx do so cautiously. Do not use sledgehammers like FQ without any good reason, and stop at the slightest sign of adverse reaction if it happen.


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PostPosted: Sun Feb 26, 2012 4:46 pm 
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They actually found Ureaplasma parvum in my urethra 2,5 years ago and that's why they think I still might have it, although, the tests are negative now.


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PostPosted: Thu Mar 01, 2012 5:39 pm 
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Joined: Thu Sep 02, 2010 9:53 am
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Location: UK
Finally saw a pelvic pain therapist as I'm in a lot of pain down there. She was excellent. In a one hour session she found specific points up the back passage, on my abdomen and thighs that when manipulated were extremely painful.

She had read up on Finasteride before my visit and was interested in my symptoms. In a rush now but will try and post later - today my completely shrunken left nut is a little larger and firmer - only slightly. There's definitely a link. Feels like everything needs kind of unblocking down there.


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PostPosted: Thu Mar 01, 2012 6:24 pm 
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Joined: Tue Nov 16, 2010 6:28 am
Posts: 780
Age: 22
Drug: Propecia
Usage: 1 month
Started: 7- 0-2009
Stopped: 8- 0-2009
Location: N/A
ChrisC wrote:
Finally saw a pelvic pain therapist as I'm in a lot of pain down there. She was excellent. In a one hour session she found specific points up the back passage, on my abdomen and thighs that when manipulated were extremely painful.

She had read up on Finasteride before my visit and was interested in my symptoms. In a rush now but will try and post later - today my completely shrunken left nut is a little larger and firmer - only slightly. There's definitely a link. Feels like everything needs kind of unblocking down there.


that's very interesting. does your doctor think the spots on your back would attribute towards your pelvic problems?

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those who say it can not be done should not interrupt the people doing it


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PostPosted: Fri Mar 02, 2012 5:13 pm 
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bryce54 wrote:
ChrisC wrote:
Finally saw a pelvic pain therapist as I'm in a lot of pain down there. She was excellent. In a one hour session she found specific points up the back passage, on my abdomen and thighs that when manipulated were extremely painful.

She had read up on Finasteride before my visit and was interested in my symptoms. In a rush now but will try and post later - today my completely shrunken left nut is a little larger and firmer - only slightly. There's definitely a link. Feels like everything needs kind of unblocking down there.


that's very interesting. does your doctor think the spots on your back would attribute towards your pelvic problems?

Back passage not back ie arse/ass - answer is yes, definitely.


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PostPosted: Thu Mar 15, 2012 8:38 am 
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Age: 26
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Location: Indy
After starting this thread....a long time ago....I have pretty much come to the conclusion that I (we) definitely do have pelvic floor issues. However this is not the CAUSE of PFS, but just a symptom. It is however causing many of the shrinkage, numbness, veins, (penile/urinary) symptoms that we have.

So the focus should not just be on treating the pelvic floor and prostate, but finding what the CAUSE is of PFS (molecular, infection, etc).


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PostPosted: Thu Mar 15, 2012 10:14 am 
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Joined: Mon Oct 31, 2011 10:01 am
Posts: 825
Age: 30
Drug: Propecia
Usage: Off and On
Started: 05 Jul 2005
Stopped: 0- 0-2011
Location: Las Vegas
moonman1 wrote:
After starting this thread....a long time ago....I have pretty much come to the conclusion that I (we) definitely do have pelvic floor issues. However this is not the CAUSE of PFS, but just a symptom. It is however causing many of the shrinkage, numbness, veins, (penile/urinary) symptoms that we have.

So the focus should not just be on treating the pelvic floor and prostate, but finding what the CAUSE is of PFS (molecular, infection, etc).

Pretty much sums up what I think too. Maybe the pelvic floor is right with AR, like penile tissue, causing us problems. Good work on bring the pelvic floor problems to the attention of this forum, moonman.

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"Finasteride was well-tolerated." Merck

"DHT does not appear to have any essential physiological role in the adult male." Merck to the FDA, November 1997


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PostPosted: Fri Mar 16, 2012 11:20 am 
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Finasteride exposed us to more bacteria I think. Made it get stuck and proliferate there. Such drug cannot evoke autoimmunity. It has to be bacteria that's not just so easy to detect. We need science, not clinics.


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PostPosted: Sun Mar 18, 2012 6:45 pm 
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But how does the prostatitis come so quick? People already feel side effects on the first few days on the drug. Does normal microflora become pathogenic?


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PostPosted: Wed Mar 21, 2012 3:53 am 
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Joined: Fri Mar 16, 2012 11:33 pm
Posts: 21
Age: 33
Drug: Propecia
Usage: Over 10y
Location: Italy
I have a question, I'm really scared about this.. Not all the time, but some times I notice that when I was (not anymore) able to have an erection, the muscle between anus and testicles which I believ is the pelvic floor, would swell a lot. Is it a symptom?

Also, some times after ejaculating (only if masturbating) I would feel pain a lot in the prostate.

1 day I felt so much pain that I went to the doctor and he did the Index finger test, and said it was normal.

Is this pain, also a symptom'?

Thanks!


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