PROPECIAHELP: Persistent Finasteride Propecia Proscar side effects info & discussion forum

Forum for men with PERSISTENT sexual, mental & physical side effects which CONTINUE DESPITE QUITTING Finasteride (Propecia, Proscar), a 5AR inhibitor drug for hair loss, prostate enlargement & prostate cancer.
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PostPosted: Thu May 31, 2012 12:23 am 
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Joined: Tue Nov 16, 2010 6:28 am
Posts: 764
Age: 22
Drug: Propecia
Usage: 1 month
Started: 7- 0-2009
Stopped: 8- 0-2009
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cumkwakka wrote:
guys i have a question about the whole pelvic floor thing

when i started HC i had the same experience like moonman and felt norepinephrine going down

i am ready to try an alpha blocker

but i have some other questions:

in my quest for solving my ED i had this symptom

- wood gets up, then precum oozes out and kills wood

now im reading into the pelvic floor thing and want to know if this constitues pelvic floor issues:

if i drive a car for an hour or two, i get real bad pain in my nuts, i have to actually get out and walk a little bit.. i told this a couple times to people driving along with me, and i don't believe they have this issue

would that constitute anything like pelvic floor issues?

also the precum oozing out, could that be of the same origin as well?

i had a torsio testis when younger but i see many people have this issue, so perhaps i can identify it as pelvic floor tension, but i always assumed it was cuz of my torsio testis that i had pain when driving because my nut is fucked up

one thing that works for me is bodyweight exercise, i feel less precum, also when i go to toilet and have 2 bm a day i feel less "pressure" on the prostate if that makes sense


since you have obvious physical things going on (sitting in car causes aches), why don't you see a physical therapist and see what they say? maybe they have the answers.

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PostPosted: Fri Jun 01, 2012 9:25 am 
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Quote:
i am ready to try an alpha blocker


6 days on alphablocker

since now no effect.
i have to keep taking?

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PostPosted: Fri Jun 01, 2012 2:03 pm 
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Joined: Tue Jul 06, 2010 10:04 am
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Location: Italy
Urologists says at least 2 months...


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PostPosted: Fri Jun 01, 2012 4:49 pm 
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Location: ontario canada
I noticed a difference right away. I just recently tried doxazosin and quit after about 4 days. Kinda wears me out.. and I dont think it worked as well as uroxatral.


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PostPosted: Fri Jun 01, 2012 7:06 pm 
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maybe the only small difference is about girth
(that was the only thing that was improving by itself since my crash)
i'll keep taking

however my uroandro told me to try also laroxil but i'm scared

constant is the pelvic tension about 3 cm under my belly button like a fanny bag
this drain libido and sensibility, but hormonally i feel fine

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PostPosted: Mon Jun 11, 2012 6:48 am 
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Posts: 485
I have to start taking Prostamol Uno soon. I haven't had any pain for a while and hopefully this will make it stay that way.


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PostPosted: Mon Jun 11, 2012 12:13 pm 
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after 10 days i'm improved a bit
i had also magnetotherapy, probably the placebo effect did contribute :)

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PostPosted: Mon Jun 11, 2012 7:00 pm 
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Joined: Tue Mar 01, 2011 11:06 am
Posts: 263
Location: UK
Age: 24
Drug: Propecia
Usage: 7 weeks
Started: 28 Nov 2010
Stopped: 24 Jan 2011
Location: UK
I'm not sure if anyone has come across this forum yet, but i just thought i'd post it here.

http://www.natmedtalk.com/f33/21005-my-prostatitis-story-85.html

Most these guys are suffering with CPPS..... it is amazing the wide ranging symptoms these guys have (fatigue, numbness, emotional numbness etc.) some for many years simply from having CPPS. From what i can see none of these guys took finasteride, yet their symptom complex is remarkably similar to PFS. Really interesting.


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PostPosted: Tue Jun 12, 2012 4:08 pm 
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Posts: 485
Actually, I think connecting all this to Propecia is getting us lost. Chronic prostatitis or CPPS is a very spread disease and it would be very difficult to relate it to finasteride. 50% of men experience prostatitis in their life, asymptomatic inflammation of the prostate is 5 to 10% and the prevalence of CPPS is 6,3%. It's just a coincidence (not an amazing one) that we're also talking about this here.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2576075/?tool=pmcentrez -- read, if you don't believe me.
http://www.ncbi.nlm.nih.gov/pubmed/18455767 -- a vey good study done in my university.
If prostatitis is the only thing you're experiencing, then this is probably not related to finasteride at all. Finateride is actually used to relieve the symptoms of prostatitis (it makes the ducts wider and therefore increases urine flow).
I don't see many of us in this part of the forum, so I think it may actually be the small 6,3% that of men that are actually supposed to have these symptoms. And even if we all were actually arguing about the prostatitis, we would still at best form about 5% of all the Propecia users.
The problem is, we're are super aware of our health. Many men don't give a shit at all, if they have slight pain in their perineum or penis once in a while.
And this really is a cureless disease, so there's still much to be depressed about, but you shouldn't blame it on yourself for taking the stupid pill.

To prove something, I would like to know, if anybody here with these symptoms hasn't ever had unprotected sex. If you get this inflammation without sexual contact, then this is something to think about. But Propecia causing an autoimmune disease in the prostate -- even more unrealistic. And this problem will probably never be solved, because the symptoms are so mild and easily relieved with COX2 inhibitors, physiotherapics and stuff like that.

I think it's time to move on or move to a different forum with this discussion. There's so many of us here already and there's a good chance of finding rare diseases too. You can't relate everything to Propecia.

Btw, my doctors wants me to take saw palmetto and I'm actually thinking about it. And I have my own theory of stopping this thing which I presented to a few immunologists in my school. One of them thought it could be a solution, if the inflammation was non-infectios. I plan to take COX2 inhibitors for a longer time. This will stop the inflammation for that time and hopefully make the body forget about it. The theory is that the inflammation is boosting itself on its own and if you artificially stop the cascade for a long enough time, it's gone forever. I have nabumeton waiting. Wish me luck, because I'm probably doing it one day.


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PostPosted: Tue Jun 12, 2012 4:51 pm 
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Age: 0
Location: UK
Fanjeera wrote:
If prostatitis is the only thing you're experiencing, then this is probably not related to finasteride at all. Finateride is actually used to relieve the symptoms of prostatitis (it makes the ducts wider and therefore increases urine flow).
I don't see many of us in this part of the forum, so I think it may actually be the small 6,3% that of men that are actually supposed to have these symptoms. And even if we all were actually arguing about the prostatitis, we would still at best form about 5% of all the Propecia users.
The problem is, we're are super aware of our health. Many men don't give a shit at all, if they have slight pain in their perineum or penis once in a while.
And this really is a cureless disease, so there's still much to be depressed about, but you shouldn't blame it on yourself for taking the stupid pill.

To prove something, I would like to know, if anybody here with these symptoms hasn't ever had unprotected sex. If you get this inflammation without sexual contact, then this is something to think about. But Propecia causing an autoimmune disease in the prostate -- even more unrealistic. And this problem will probably never be solved, because the symptoms are so mild and easily relieved with COX2 inhibitors, physiotherapics and stuff like that.

I think it's time to move on or move to a different forum with this discussion. There's so many of us here already and there's a good chance of finding rare diseases too. You can't relate everything to Propecia.

Btw, my doctors wants me to take saw palmetto and I'm actually thinking about it. And I have my own theory of stopping this thing which I presented to a few immunologists in my school. One of them thought it could be a solution, if the inflammation was non-infectios. I plan to take COX2 inhibitors for a longer time. This will stop the inflammation for that time and hopefully make the body forget about it. The theory is that the inflammation is boosting itself on its own and if you artificially stop the cascade for a long enough time, it's gone forever. I have nabumeton waiting. Wish me luck, because I'm probably doing it one day.


I find all of that very offensive. I had NONE of the fucking symptoms I have now before taking the shit that's ruined my life.

You talk shit. You talk like the doctors I've seen. Really fucking angry by what you've said.


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PostPosted: Tue Jun 12, 2012 5:09 pm 
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Joined: Thu Jul 07, 2011 5:41 pm
Posts: 616
Age: 26
Drug: Propecia
Usage: 80 days
Started: 0-11-2010
Stopped: 0- 3-2011
Location: USA
@FANJEERA

I have to agree with ChrisC. What a horrible and foolish post. Just pathetic.

I felt wonderful in all aspects of life until I took finasteride. I only started having these awful life destroying side effects while taking finasteride, only 80 pills, and they have never gone away. It is like night and day.

What an awful post. You are either stupid or you work for Merck. So, which is it?

Not related to finasteride, huh? Wow.

I think you should move to another forum.

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PostPosted: Tue Jun 12, 2012 5:34 pm 
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You can relate all your mental and other sexual side effects to Propecia, but you can't blame having such a wide spread disease on it. It's so prevalent that I would even call it normal. This topic is about not about all aspects of life, but about prostatitis, which has a prevalence of 6,3% and a life-time incidence of 50%. What makes you think you don't fit in to these percents?
It's like trying to link common cold to PFS.


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PostPosted: Tue Jun 12, 2012 5:50 pm 
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Age: 26
Drug: Propecia
Usage: 80 days
Started: 0-11-2010
Stopped: 0- 3-2011
Location: USA
@Fanjeera

You really believe it is a fluke that this symptom first appeared for me during my use of finasteride at age 24 and has not come close to improving? A problem I never, ever had until using finasteride? You must be shrooming ...

I am not going to listen to you anymore. You are giving me a head ache.

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PostPosted: Tue Jun 12, 2012 6:42 pm 
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Joined: Fri May 20, 2011 10:55 pm
Posts: 114
Age: 30
Drug: Propecia
Location: Canada
A lot of misdirected anger around here. I understand that we're all feeling pretty raw and miserable but attacking someone for posting a point of view is really quite silly. No need for that sort of nonsense. No one on the other end of username has anything to do with your current predicament.

I appreciate Fanjeera's post. Lately I've been more and more convinced that my problem is likely pelvic floor related (perhaps including some kind of pudendal neuropathy/inflammation)... there's a lot of overlap between my symptoms and the complex of symptoms indicated in CPPS. All this to say... I'm not emotionally invested in a strict "PFS" diagnosis. I have no doubt that Finasteride was involved and somehow triggered my current health problems but I don't see the value in becoming committed to a premature diagnosis. I think we should all come to terms with the fact that no one really knows shit about this condition. A little more humility would be nice.

Speaking strictly for myself... I intend to explore the CPPS angle much more extensively over the next while.


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PostPosted: Tue Jun 12, 2012 6:54 pm 
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Age: 26
Drug: Propecia
Usage: 80 days
Started: 0-11-2010
Stopped: 0- 3-2011
Location: USA
I refuse to believe this particular issue just happened to appear for me for the first time ever while taking finasteride and has not calmed down since. I know people here like to look for alternative explanations to their problems, and if it helps, that is great. Again, there is no way in my mind this symptom appeared for the very first time while I was taking finasteride by some fluke. No way. I will not listen to someone try to tell me I would have had this symptom anyways. Everyone can believe what they want, but it is foolish to make a statement like Fanjeera did,and in my personal case, it is just plain wrong and inaccurate. But believe what you want, maybe in your case he is right. But in my case, he is very, very wrong.

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PostPosted: Tue Jun 12, 2012 6:57 pm 
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Joined: Fri May 20, 2011 10:55 pm
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Age: 30
Drug: Propecia
Location: Canada
Lennon wrote:
I refuse to believe this particular issue just happened to appear for me for the first time ever while taking finasteride and has not calmed down since. I know people here like to look for alternative explanations to their problems, and if it helps, that is great. Again, there is no way in my mind this symptom appeared for the very first time while I was taking finasteride by some fluke. No way. I will not listen to someone try to tell me I would have had this symptom anyways. Everyone can believe what they want, but it is foolish to make a statement like Fanjeera did,and in my personal case, it is just plain wrong and inaccurate. But believe what you want, maybe in your case he is right. But in my case, he is very, very wrong.


That's fine man. I don't think what he said was particularly insensitive (and I've read a lot of retarded, insensitive comments on this forum). If his theorizing doesn't ring true to you that's perfectly understandable. What I took exception to was the way you guys jumped down his throat.

Anyways... I hope we all find the answers we need to get healthier. Truly.


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PostPosted: Tue Jun 12, 2012 7:11 pm 
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Age: 26
Drug: Propecia
Usage: 80 days
Started: 0-11-2010
Stopped: 0- 3-2011
Location: USA
@Komas

Fair enough. I found what he said upsetting at the time for obvious reasons, but I should have kept my composure.

Sincere apologies for not presenting my argument in a much more mature fashion.

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PostPosted: Tue Jun 12, 2012 7:34 pm 
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I'm only talking about prostatitis and I don't want too many things to remind me of this horrible experience with Propecia, so I don't want to get this discussion in my mail.
My theory is that an infection or an imbalance in the overall microflora which the organism already has got rid or has been cured out by antibiotics (that means you have to be sure you don't have an actual acute infection still in your prostate, but I'm sure all of us here have visited a doctor for this problem to find out) triggered the first immune response. That immune response then irritated the surrounding tissue and is still doing so by circling back and forth between the nerves and muscles and whatever more you can find there. You can easily stop neutrophils from infiltrating the tissue or lessen it to a more physiological degree by inhibiting the synthesis of chemicals that are attracting them. And I think that, if you do it for a long enough time the prostate and the surrounding tissue can rest from the constant pressure and oxidative stress for a long enough time you disrupt the circle of the self-activating and self-amplifying inflammation.This is done with COX2 inhibitors or NSAID. They are actually meant just to relieve the pain and the symptoms. I have got my hands on nabumeton (Relifex). I read some studies how the inflammation was reduced for a pretty long time (2 months) after being on this treatment for 30 days. I don't know how long these medications are taken normally and if 30 days is enough to stop it. It will probably come back as my theory is probably wrong, but it's worth a try I think, if you have the symptoms and the pain anyway and need relief.


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PostPosted: Tue Jun 12, 2012 7:42 pm 
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Joined: Fri May 20, 2011 10:55 pm
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Age: 30
Drug: Propecia
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^ Interesting stuff Fanjeera. My doc ruled out prostatitis on the basis of a digital rectal exam. I think I'm going to need to ask for a more detailed exam of prostatitic secretions or something.


Lennon wrote:
@Komas

Fair enough. I found what he said upsetting at the time for obvious reasons, but I should have kept my composure.

Sincere apologies for not presenting my argument in a much more mature fashion.


No worries bro.... we're all going through this disaster together. One way or another.

Take care,


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PostPosted: Tue Jun 12, 2012 7:48 pm 
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komas wrote:
^ Interesting stuff Fanjeera. My doc ruled out prostatitis on the basis of a digital rectal exam. I think I'm going to need to ask for a more detailed exam of prostatitic secretions or something.


Lennon wrote:
@Komas

Fair enough. I found what he said upsetting at the time for obvious reasons, but I should have kept my composure.

Sincere apologies for not presenting my argument in a much more mature fashion.


No worries bro.... we're all going through this disaster together. One way or another.

Take care,
Umm... but do you have any symptoms that could hint prostatitis? You can't rule out prostatitis just by touching the prostate, I think. You massage it and get the secretion or let a semen and urine analysis be done. You need to know the neutrophil and round cell count and IL-6 and of course that there's no infectious bacteria there. And it would be good to know the fertility factors also to know, if the problem isn't advanced more serious. If you have pain or you are infertile, these things are usually ordered by the doctos. You should, of course, be able to get them by paying yourself.
But don't be too afraid, if you have leukocytosis in your semen. A lot of men do. 5% to 10%, if the requirement is 1 million leukocytes in ml (this has been assignid by WHO), and as much as 19% do, if the requirement is 0,2 million leukocytes per ml (this has been suggested by microbiologists and seems logical to them). If you don't have any symptoms, there's no need to worry and you don't need treatment. Asymptomatic prostatitis merely means you will probably have actual one in the future. But who doesn't get prostate problems in the old age?


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