PROPECIAHELP: Persistent Finasteride Propecia Proscar side effects info & discussion forum

Forum for men with PERSISTENT sexual, mental & physical side effects which CONTINUE DESPITE QUITTING Finasteride (Propecia, Proscar), a 5AR inhibitor drug for hair loss, prostate enlargement & prostate cancer.
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If posting blood tests, please include test RANGES beside your results. Example:

CORRECT: Testosterone: 518 (240-950 ng/DL)

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PostPosted: Sat Jun 19, 2010 9:12 am 
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Posts: 403
Deranged thyroid hormones could explain some our symptoms (depression, anxiety, brain fog, lethargy, even ED and other sexual symptoms). There are a few reports on this site of individuals who have improved their symptoms with thyroid hormones.


****PLEASE POST YOUR THYROID FUNCTION TEST RESULTS HERE****

A full screen should include

Free T4
Free T3
TSH (Thyroid Stimulating Hormone)
Reverse T3 (apparently a very sensitive marker and rarely done).


LAB TESTS AND LABS WHERE NO DOCTOR REQUEST IS NECESSARY
http://www.stopthethyroidmadness.com/re ... d-labwork/

LAB VALUES AND EXPLANATIONS
http://www.stopthethyroidmadness.com/lab-values/



Discussion on thyroid function and Post Propecia Syndrome should take place here:

viewtopic.php?f=4&t=1291


An excellent analysis of the importance of TFTs can be found here: (external website)

http://www.stopthethyroidmadness.com/


Last edited by -JN- on Sat Aug 28, 2010 3:11 pm, edited 2 times in total.

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PostPosted: Sat Jun 19, 2010 4:45 pm 
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JN, I don't quite have a full thyroid panel. I'm getting one done end of next week though..These tests here are from 05/06/2010




TSH 2.57 Range: .27-4.20

TOTAL T3 .98 Range: .80-2.00

Free T4 Uptake 1.30 Range .9-1.70


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PostPosted: Sun Jun 20, 2010 12:14 am 
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Joined: Fri Jun 26, 2009 12:02 am
Posts: 2356
31 March,2010

TSH .65 .3 - 5.9

FT4 11.4 7.0 - 17.0 pm/L
FT3 4.4 3.3 - 6.0 pm/L

19 Mar 2009

sTSH 1.00 .35 - 5.0 pm/L
FT4 12 10 - 20 pm/L
FT3 4.1 2.6 - 5.7 pm/L


Last edited by spstriken on Sun Jun 20, 2010 4:12 am, edited 1 time in total.

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PostPosted: Sun Jun 20, 2010 2:10 am 
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JN results, 31/7/2008

TSH 1.92
Free T4
Free T3

Thyroid antibodies were negative

I need to get Reverse T3 which is the best marker.

JN


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PostPosted: Sun Jun 20, 2010 2:28 pm 
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Joined: Fri Jul 03, 2009 1:20 am
Posts: 1065
sufferer2001recovered2009 wrote:
Deranged thyroid hormones could explain some our symptoms (depression, anxiety, brain fog, lethargy, even ED and other sexual symptoms). There are a few reports on this site of individuals who have improved their symptoms with thyroid hormones.

****PLEASE POST YOUR THYROID FUNCTION TEST RESULTS HERE****

A full screen should include

Free T4
Free T3
TSH (Thyroid Stimulating Hormone)
Reverse T3 (apparently a very sensitive marker and rarely done).


Discussion on thyroid function and Post Propecia Syndrome should take place here:

viewtopic.php?f=4&t=1291


An excellent analysis of the importance of TFTs can be found here: (external website)

http://www.stopthethyroidmadness.com/



JN,

I am looking at a diagnostic test form right now. The one I am using for my blood test for tomorrow. I don't see Reverse T3 offered. Maybe they don't have the capability for this hormone.

They have:

T3, Total
T3 Uptake
T4 Total
T4 Free

I don't even see T3 Free, listed. Is T3 Uptake the same as T3 Free?

Which of these is best to add?

I'll obviously add:
TSH
T4 Free


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PostPosted: Sun Jun 20, 2010 2:39 pm 
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Joined: Wed May 27, 2009 9:09 am
Posts: 65
Here go my TFT results:

August 2009, before any post-finasteride treatment:

TSH 4.61 µU/mL range 0.3 - 4.5
T3 libre 3.31 pg/mL range 2.1 - 4.2
T4 libre 1.22 ng/dL range 0.7 - 1.8
Ac. antithyrodiens: negative

October 2009, after 90 mg/day of armour thyroid since august 2009

TSH 0.93 µU/mL range 0.3 - 4.5
T3 libre 4.21 pg/mL range 2.1 - 4.2
T4 libre 0.86 ng/dL range 0.7 - 1.8
Ac. antithyrodiens: negative

Currently on 75 mg / day of Erfa thyroid, haven't tested yet, but will do so soon and post results in the forum.


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PostPosted: Mon Jun 21, 2010 1:02 am 
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Posts: 403
Right, I'm a little over excited about something.

Everyone, please check out 'Reverse T3 syndrome' or 'Wilson's syndrome' (not the copper disease).
I think this may explain A LOT about our symptoms. I've been up all night researching this and I must say, I think 'Reverse T3' syndrome may be VERY important here. Apparently easily treated. And links in with adrenal issues.

Here is a good link


http://www.medical-library.net/reverse_ ... drome.html


It is ESSENTIAL to get Reverse T3 tested along with ALL other thyroid hormone parameters AT THE SAME TIME in the same blood test.

JN


Last edited by -JN- on Mon Jun 21, 2010 6:21 am, edited 1 time in total.

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PostPosted: Mon Jun 21, 2010 1:34 am 
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Joined: Fri Nov 03, 2006 10:43 pm
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Age: 31
Drug: Proscar
Usage: 11 months
Started: 0- 0-2004
Stopped: 0- 0-2005
Location: Propeciahelp
'Wilson's syndrome' (aka Reverse T3 dominance) is not a legitimate diagnosis from the medical community. Wilson's syndrome is typically ascribed to by alternative medicine and naturopaths who fall outside the realm of traditional medicine, and who often promote other scientifically debated/unaccepted conditions such as "adrenal fatigue".

One must be careful not to fall for dubious claims and treatments. Just something to keep in mind.


http://en.wikipedia.org/wiki/Wilson's_syndrome

Quote:
"Wilson's syndrome is not recognized as a medical condition by mainstream medicine.[1] The American Thyroid Association (ATA) describes Wilson's syndrome as at odds with established knowledge of thyroid function. The ATA described the diagnostic criteria for Wilson's syndrome as imprecise and non-specific, and found a lack of any scientific evidence supporting Wilson's claims. The ATA further raised concern that the proposed treatments were potentially harmful.[2] Florida State Medical Board members described Wilson's syndrome as a "phony syndrome" and a scam during disciplinary action against Wilson,[3][4] while Quackwatch has stated it is "bogus diagnosis".[5]"

"In 1988 a 50-year-old woman died of an arrhythmia and heart attack while taking excessive amounts of thyroid hormone prescribed by Wilson; around that time she confessed to not taking the medicine as regularly as prescribed.[8] Four years later, in 1992, the Florida Board of Medicine took disciplinary action against Wilson,[9] accusing him of "fleecing" patients with a "phony diagnosis".[3] The Board of Medicine and Wilson settled the disciplinary action by agreeing to a 6-month suspension of Wilson's medical license, after which Wilson would need to attend 100 hours of continuing medical education, submit to psychological testing, and pay a $10,000 fine to resume practice. Wilson also agreed not prescribe any thyroid medicine to anyone unless and until the Board of Medicine determined that the medical community has accepted “Wilson's Syndrome” and Wilson’s methods and modalities of treatment.[8][10]"

"During disciplinary action against Wilson, members of the Florida Board of Medicine stated that there was no evidence [Wilson's] syndrome existed. They described Wilson's treatments as dangerous and a scam, stating that Wilson was fleecing insurance companies and patients with treatments for "a phony syndrome".[3][4] They described the treatments as dangerous. [3][4]

The American Thyroid Association (ATA), a professional association dedicated to promoting thyroid health, disavows Wilson's Syndrome. The ATA stated in 2005 that a "thorough review of the biomedical literature has found no scientific evidence supporting the existence of 'Wilson's Syndrome'." The statement added that the mean temperature of normal persons in the AM on waking is 97.5 °F, not 98.5 °F, and that many of the symptoms described by Wilson are nonspecific and typical of depression, anxiety, and psychological and social stress. It also notes that a similar set of symptoms occurs in the alternative diagnoses of neurasthenia, chronic fatigue, fibromyalgia, multiple chemical sensitivity, chronic Ebstein-Barr virus syndrome, and chronic candidiasis. Finally, the Association notes that chronic supplementation with triiodothyronine (T3) is particuarly difficult and problematic, since various tissues set their own cellular levels of this hormone by making it individually from thyroxine, and supplementation of T3 may overwhelm this normal regulatory mechanism in some of these tissues.[2] The ATA statement was a primary reference for the Mayo Clinic website statement that Wilson's syndrome is not an accepted medical diagnosis, and warning patients against the diagnosis and associated unproven therapies.[1] Quackwatch describes Wilson's syndrome as a "bogus diagnosis".[5]"

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PostPosted: Mon Jun 21, 2010 1:46 am 
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Mew, this could be part of the puzzle. We cannot disregard the possibility of being hypothyroid.

I'm getting all the tests done, and will proceed from there.


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PostPosted: Mon Jun 21, 2010 2:15 am 
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I just want to point out dr jacobs also had a patient whom had this syndrome and he was also accused by the pharmacy of irresponsible prescribing - but he is the only person who was able to fix her condition. Apparently she had a resistance to thyroid hormone. So, just because the medical community doesn't accept a condition, it doesn't mean it doesn't exists. Like, ours for example.


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PostPosted: Mon Jun 21, 2010 2:47 am 
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Started: 0- 0-2004
Stopped: 0- 0-2005
Location: Propeciahelp
I'm simply saying it's important to evaluate all information as objectively as possible, not that hypothyroidism isn't necesarily part of the puzzle. In my own case, my TSH was at 4.54 (range 5.5) within 3 months after quitting Fin, and there are other users on this site diagnosed with hypothyrodism (one even with Hashimoto's) who improved with treatments.

What I was drawing attention to was the specific methods/diagnosis of Reverse T3 dominance as described by Dr. Wilson, which has not been accepted by the medical community at large. Just something to be kept in mind when seeking treatments. By all means though, one can ascribe to whatever medical system, belief etc they want.

Good luck, hopefully some patterns will emerge here either way. Let's continue this thread with test results, as that is what it's meant to be about.

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PostPosted: Mon Jun 21, 2010 8:50 am 
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Post-finasteride syndrome hasn't been accepted by the medical community at large is it bogus?

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PostPosted: Mon Jun 21, 2010 5:07 pm 
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Here is a link to a cheap lab for testing, for those interested:

https://econolabs.com/tests/?l=T

59 dollars for reverse t3


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PostPosted: Mon Jun 21, 2010 5:21 pm 
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Mew wrote:
I'm simply saying it's important to evaluate all information as objectively as possible, not that hypothyroidism isn't necesarily part of the puzzle. In my own case, my TSH was at 4.54 (range 5.5) within 3 months after quitting Fin, and there are other users on this site diagnosed with hypothyrodism (one even with Hashimoto's) who improved with treatments.

What I was drawing attention to was the specific methods/diagnosis of Reverse T3 dominance as described by Dr. Wilson, which has not been accepted by the medical community at large. Just something to be kept in mind when seeking treatments. By all means though, one can ascribe to whatever medical system, belief etc they want.

Good luck, hopefully some patterns will emerge here either way. Let's continue this thread with test results, as that is what it's meant to be about.

Mew can you look at my values? Also how did u treat your hypo thyroid?


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PostPosted: Tue Jun 22, 2010 8:50 pm 
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I'm not seeing anyone else post their thyroid results...Please stop being lazy and post them.


THREAD ON A HYPOTHYROID male with erectile dysfunction(his labs are very very similiar to mine)

http://www.musclechatroom.com/forum/sho ... php?t=4757



Thanks


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PostPosted: Fri Jun 25, 2010 2:21 pm 
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Here are my results taken earlier this year:

TSH 2.41 (0.320 - 5.500 uIU/mL)
Free T4 0.90 (0.70 - 1.8 ng/dL)

They seem to follow a pattern on this board with moderately high TSH values (2.41 is in the 5 percentile range even though the "acceptable" range goes up to 5.5) and low Free T4 values. Many of us appear to be borderline hypothyroid.


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PostPosted: Fri Jun 25, 2010 2:43 pm 
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Here's mine from back in March. I'll have a new blood test result soon with RT3 as well. I added IGF1, as there is likely a link to the Thyroid problem. ALso my Cortisol stimulation test result. Many hypothyroid sufferers have low cortisol/adrenal problems.

Anyone have a comment on my cortisol? it seems very low to me. Stupid doctor, said I was fine.

IGF1 93 (106-277)
IGF3 2.7 (3.4-6.7)

Free T4 1.01 (.61-1.12)
Free T3 2.81 (2.50-3.90)

Cortisol stimulation

Cortisol Basel 12.6 (8.7-22.4)


Also, I should mention to you guys that TSH is not a reliable indicator of thyroid problems. Read this article that is on, "Stop the Thyroid Madness"

The article explains one of the main reasons that Thyroid sufferers never get treated is doctors use TSH levels as main determining factor. These patients in turn, suffer for years never being diagnosed properly.

http://www.stopthethyroidmadness.com/ts ... s-useless/


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PostPosted: Tue Jun 29, 2010 6:33 am 
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Reverse T3 result 25/6/2010

786 range is (140 to 540)

JN


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PostPosted: Fri Jul 02, 2010 2:17 am 
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Location: Brazil
JN you're on to something - I can feel it in my bones.......
Way to go!


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PostPosted: Sat Jul 03, 2010 12:58 pm 
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Body Temperature:Throughout the Day

07/02/2010
Morning: 95.8

Afternoon:96.7

Afternoon again: 97.3

Night: 97.1


07/03/2010

Late Morning: 96.1
Evening: 97.8

07/06/2010

Morning: 96.3
Late Morning: 97.7
Night: 97.6


Last edited by anonnn1 on Wed Jul 07, 2010 12:30 am, edited 3 times in total.

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