About this Site

propeciahelp.com is a website and discussion forum for men suffering from persistent sexual, mental & physical side effects from the drug Finasteride (Propecia, Proscar, generics), a selective 5-alpha reductase Type II (5AR2) enzyme inhibitor, frequently marketed as a treatment for male pattern baldness, benign prostatic hyperplasia (BPH) and as androgen deprivation therapy.

A syndrome of mental, physical and sexual side effects can remain and/or develop after discontinuing the drug, leading to the term “Post-Finasteride Syndrome” (PFS) in medical literature. Propeciahelp.com exists as a place of support for men affected by PFS, and as a resource of patient experiences. Propeciahelp is NOT a hairloss forum. Please refrain from joining if you are not suffering from PFS.

Propeciahelp has initiated and supported many efforts towards awareness of PFS and scientific research into the condition, and is currently running self-initiated projects to further advance this important public health issue. The site also aims to maintain the visibility of the problem and the overdue need for the primary scientific investigations necessary to help the many patients suffering and ensure the public are eventually informed of the full health risks of prescribing finasteride to young men – risks to which a fully informed consent is not currently obtained.

Due to a consistent influx of patients suffering a remarkably similar clinical syndrome following the use of other anti-androgenic endocrine disruptive substances, we now offer membership to patients experiencing the persistent symptom profile of PFS following the use of the following drugs or substances:

  • Dutasteride (Avodart, Duodart, generics)
  • Isotretinoin (Accutane, Roaccutane, generics)
  • Antidepressant (various including serotonergic medications)
  • Saw Palmetto extract
  • Phenolic compound supplement (including Milk Thistle, Resveratrol, Rutin, Genistein)
  • Minoxidil (Rogaine, generics)
  • Ketoconazole
  • Androgen receptor antagonist (including Cyprotone acetate, Spironolactone, Bicalutamide, Enzalutamide, Abiraterone acetate, RU 58841)
  • GnRH analogue such as Leuprorelin (Lupron, Eligard), Goserelin (Zoladex) or Triptorelin (Decapeptyl, Gonapeptyl)

Discussion forum

The propeciahelp.com discussion forum exists as a place of support and connection for men suffering from Post-Finasteride Syndrome and as a place to share and record their experiences. Membership of the discussion forum is restricted to people who used a 5-alpha reductase inhibitor (or one of the endocrine disrupting substances noted above) and are experiencing persistent side effects that have not resolved within months or years after cessation.

New patients and visitors should understand that the membership of the site is comprised of patients in widely variable conditions doing their best to navigate an astonishing situation and trying to make sense of what is happening to them to the best of their abilities. Due to a longstanding failure at the clinical level and a dearth of primary research into the disease, this is often in the absence of appropriate clinical support. The staff of propeciahelp.com emphatically assert that discussions taking place on this or any PFS patient forum should not be considered medical advice. While controlled scientific study has confirmed epigenetic differences in PFS patients, the molecular level drivers of the condition are yet to be conclusively elucidated and PFS is currently without any effective therapeutic approach. Any posts containing assertions as to the etiology of PFS or suggestions of potential therapies are the thoughts of the individual authors and are not endorsed by the staff of propeciahelp.

History

The support group was originally formed in 2003 on Yahoo Groups. As membership for the Yahoo group grew to 1000+ people over 3 years, it was decided that a newer, easier-to-use forum was needed to help categorize and track the wealth of information collected. In 2006, www.propeciahelp.com was created. The original Yahoo group is still available as a repository of past information, and can be referenced at any time by members who have access to it. In April 2010, propeciahelp.com was updated to include a content management system (website). As of May 2018, the site has been relaunched again with a mobile-first focus in mind, and modern software and functionality. Read more about the 2018 relaunch.

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